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| Viewing Page 1 of 1 (Total Posts: 3) |
| Author | Comment |
Gena
 Apr 24, 07 - 4:57 AM |
New & gloomy
I'm new to this site & just wanted to say hi. I've had ME for 10 years or so, although it's taken a long time for the doctors to accept this (nah, it's just depression... stress... pnd.. etc). I had a rheumatology referral recently & they've said that I have hypermobility which makes the ME worse. (I always thought that being double-jointed was a good thing - I guess not!). So they referred me to physio & my 1st session was on Fri 13th!! Apr. Within 3 days I was in cripling pain & I'm now on crutches, which is causing me more pain because they're hard work! I've got to go back for physio tomorrow & I'm so down about it. I finally thought that something would help & it's just made the problem 100 times worse. I can't get to or from work unless my husband drops me at the door, I can't shop, bathe, dress or play with my daughter without help or severe pain. Has anyone been through physio & have you had any success with it? Sorry to be so negative on my first post!! |
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Rebbeca S
Apr 27th, 2007 - 4:15 PM |
Re: New & gloomy
Hi Geena, Im also new to this site. DOnt worry about being negative, I fully understand where your coming from with what your saying. I also have a family and its so hard, I cant be a good mother or wife as I would like to be. Its very frustrating and depressing. I understand what you mean about the physio, and I was on crutches too for a while but I kept pulling my sides and wrists really badly. My physio was so strict and I was just so exhausted by it, it made me so much worse. The excercises I were given seemed harsh! As the years have gone on, Ive found that light physio excercise and pacing it is much better, Before I pushed myself too hard, and the problem is physios are trained to push you, and it will not work on us, we do not have one injury that just need rehabilitation. I wish Id have listened to my body more and explained more to my physio and if we had worked together more it might have worked. I dont know. Anyway good luck gina hope the physio helps you. Take Care From Bec |
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Tom H
May 5th, 2007 - 6:32 PM |
Re: New & gloomy
Hello Gena, I have done physio and it helped me a bit to strengthen my muscles helping keep my joints in place, becuase I was dislocating alot, especially my knees, they were really loose (HMS). I also have M.E too so it does limit the physio as I get very exhausted from doing it because I have to keep that in mind when doing the physio. So have to keep to the little and slow method to build up and not to zap out all my energy. Its hard becuase it does feel like the HMS is fighting against the M.E and vice versa! Hope the physio goes ok, and dont worry about being negative, thats what message boards are for! Tom |
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